Touching story behind ALS patient ice bucket challenge

The trend of making ice bucket challenge videos are now prevalent. You are probably not unfamiliar with this issue. The reason why conducting ice bucket challenge is to raise the awareness by drenching with ice water.

Though some people make the challenges without the stories behind, Anthony Carbajal, a photographer made the challenge. The video he made is more than boost the consciousness to the public. In the video, I am 100% sure that you will be deeply touched for why he treats this issue as a challenge.

The video starts with a guy showing off his pink shorts with “Kiss my ALS” and dressing in red bikini. Soon the scene cuts to his real living with the Aamyotrophic lateral sclerosis (ALS).


He burst into tears and said “ALS is so scary you have no idea.”

“I have been so terrified of ALS my entire life because it runs in my family. My grandmother had it, my mother was diagnosed when I was in high school, and five months ago I was diagnosed at 26 years old.”

The disease affects the brain and the spinal cord. The motor neurons degenerate and die, making the patients increasingly difficult to move their muscles.

When their muscles aren’t used enough, they stop working entirely and patients with ALS begin to feel weak, have difficulty speaking, swallowing and breathing. In the later stages, patients may become totally paralysed.

Anthony said he is now feeling his hands in the beginning of atrophy and difficult to start his car, and button up his shirt. “Eventually I won’t be able to use my arms and hands at all,” he added.

Anthony is now taking care of his mother. He said, “I really hate talking about it, and that’s probably why nobody talks about it.”

“Nobody wants to see a depressing person that’s dying and has two to five years to live. They don’t want to talk about it they don’t want their day ruined.”

In the end of the video, he makes apology for his rant and tears.

“If I simply dump ice on my head I don’t think you’re really going to get the point”.


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